According to a WHO report, one in every 3,500 people are affected by DMD disease (Duchenne Muscular Dystrophy). Parents across the country want the government to prepare a patients directory to realize the high incidence of the disease as 20% of the total muscular dystrophy patients are in India and the disease is incurable. The children are living a life of abject despair and stating at death. Since the disease is genetic and is caused due to different kinds of effects like mutations and deletions on any exon from 1 to 79 on the dystrophin forming gene, a single medicine cannot be used to treat all the defects. Parents are demanding DMD disease care hubs with medical and healthcare professionals, patient advocacy groups, pharmaceutical companies and other key stakeholders. Besides creating awareness on DMD and evolve care protocols with emphasis on the availability of relevant literature and videos in local languages.